DATA ACCURACY PROJECT: Pennsylvania Department of Health Refuses to Provide Full COVID-19 Death Data

The Pennsylvania Department of Health is refusing to share complete information about how it counted COVID-19 deaths for reports ordered by the Pennsylvania House of Representatives.

The reports were ordered when the House unanimously approved a resolution in November 2020 requiring the Legislative Budget and Finance Committee (LBFC) to review the Department of Health’s reporting of COVID-19 testing and deaths.

State Rep. Kate Klunk sponsored the legislation, House Resolution 1087, noting that throughout the pandemic, there have been discrepancies in the information published by the Department of Health, including thousands of COVID-19 positive cases being removed from the daily totals, days where there were significant statistical anomalies in the data, the commingling of data, and COVID-19 being listed as a factor of death when the cause of death was something else.

The LBFC was tasked with providing rolling reports continuing until 90 days after Gov. Tom Wolf’s emergency declaration ends. That declaration ended in June. Five months later, the LBFC issued its first report (pdf) on Nov. 10 after being delayed due to a lack of information.

The LBFC is a bipartisan body made up of state representatives and senators. It routinely conducts studies within the Pennsylvania state government.

“Our intent was to review death certificates/records for individuals who had COVID-19 listed on their death record,” the report reads.

And although the information that the LBFC sought is generally confidential under the state’s 1953 Vital Statistics Law, the law provides exceptions to that confidentiality, allowing for the Department of Health to share the information with government agencies. The law also permits sharing the information for research.

However, LBFC’s request for death records was denied.

The Department of Health wrote in letters that the LBFC isn’t an “agency of government,” that its work isn’t “in the interest of conduct of official duty,” and that its work studying and analyzing the reporting of death records is “not research.”

“We strongly disagree with the department’s position on each of these points,” the report reads.

The LBFC finally received what it described as “highly redacted information.” With that information, it issued the report with a “scope limitation,” meaning the report attempts to answer a research question, but the limitations imposed by the lack of access to information impairs the ability to arrive at an answer.

“Unfortunately for the people of Pennsylvania, the Wolf administration attempted to shield data needed by the LBFC to do its review,” Klunk said in a Nov. 10 statement. “It’s mind boggling to me that a branch of government would try to deny a bipartisan, bicameral government entity that routinely examines data and performs research, information it needs to complete its task.”

Study findings

The LBFC noted that this is the first of what will be several studies related to COVID-19 data reporting, and it made some recommendations:

First, the Department of Health should improve its data collection and presentation on its website. While COVID-19 data is plentiful on the site, it needs better descriptions of its source and where and why it may conflict with other presented data sources. And the Department should resolve the inconsistent reporting that’s apparent in long-term care facility data, according to the report.

Second, the department should monitor the accuracy in cause of death reporting by creating a task force to address ongoing issues. Cause of death reporting was an issue before the pandemic, according to the report. Since the pandemic, the need for accurate cause of death reporting has been emphasized. The task force should include coroners, physicians, funeral directors, and medical schools. It should work to improve reporting.

Finally, the General Assembly should consider amending the Vital Statistics Law to expressly grant access to the records to legislative agencies, in order to avoid any future confusion.

The 110-page report goes into detail about the intentions of the study and the difficulties the agency faced in obtaining the necessary data. Both the LBFC and the Department of Health have used attorneys to negotiate for or block access to data.

The report provides demographic information as well. Of those who died of COVID-19 in 2020, there were 8,092 females and 7,886 males. Asian American deaths numbered 266, the category “other” accounted for 573 deaths, and there were 2,243 black deaths and 12,896 white deaths.

In 2020, no one under the age of 14 died from COVID-19 in Pennsylvania, and five died in the age range of 15 to 19, the report shows. Deaths increase with age noticeably at roughly age 60, and the majority of people who died from COVID-19 in 2020 were aged 85 to 89. In that age group, 2,792 people died.

“This data shaped policies imposed by Gov. Tom Wolf throughout this pandemic,” Klunk said. “He and all Pennsylvanians have a right to know that the data driving public health policy and individual health choices is reliable. If the governor wants a ‘government that works,’ he and his administration must be willing to not only talk the transparency talk, but walk the transparency walk by releasing this data and working with the LBFC.”

In a Nov. 3 letter to the LBFC, Acting Secretary of Health Alison Beam reiterated the position that the department isn’t legally authorized to share the requested death records with the LBFC.

“The department worked closely with LBFC to support its drafting of the report and is pleased to see the result will largely serve as a great educational tool for the General Assembly and the Public,” Beam wrote. “The department believes that Pennsylvanians have a right to accurate and concise data and information related to the COVID-19 pandemic response.”