HB-4584, As Passed House, June 20, 2017

 

 

 

 

 

 

 

 

 

 

 

 

SUBSTITUTE FOR

 

HOUSE BILL NO. 4584

 

 

 

 

 

 

 

 

 

 

 

     A bill to amend 1978 PA 368, entitled

 

"Public health code,"

 

(MCL 333.1101 to 333.25211) by adding section 5822.

 

THE PEOPLE OF THE STATE OF MICHIGAN ENACT:

 

     Sec. 5822. (1) Upon receipt of a positive prenatal or

 

postnatal test result or diagnosis of spina bifida, a health

 

facility or agency licensed under article 17 or a physician, health

 

care provider, nurse midwife, or genetic counselor that renders

 

prenatal care, postnatal care, or genetic counseling, shall give

 

the expectant or new parent the information provided by the

 

department and described in subsection (2).

 

     (2) The department shall make available to any person who

 

renders prenatal care, postnatal care, or genetic counseling to

 

parents who receive a prenatal or postnatal diagnosis of spina

 

House Bill No. 4584 as amended June 14, 2017

bifida and to any person who has received a positive test result

 

from a test for spina bifida, all of the following:

 

     (a) Up-to-date, evidence-based, information about spina bifida

 

that has been reviewed by medical experts and spina bifida

 

organizations, including information on physical, developmental,

 

educational, and psychosocial outcomes, life expectancy, clinical

 

course, intellectual and functional development, and treatment

 

options. The department may make the information described in this

 

subdivision available by posting it on the department's website.

 

     (b) Contact information regarding support programs and

 

services that may be available to expectant and new parents of

 

children with spina bifida, including information hotlines specific

 

to spina bifida, resource centers or clearinghouses, and national

 

and local spina bifida organizations.

[(c) It is highly recommended that a person who has received a positive test result from a test for spina bifida take another test to confirm that the person did not receive a false positive test result.]

     (3) The department shall post links to credible sources of

 

educational materials on spina bifida, such as the National Spina

 

Bifida Association and the Centers for Disease Control and

 

Prevention, on the department's website.

 

     (4) As used in this section, "spina bifida" means a congenital

 

malformation of the bone in the vertebral column that exposes the

 

spinal cord, which is caused by incomplete closing of the embryonic

 

neural tube.

 

     Enacting section 1. This amendatory act takes effect 90 days

 

after the date it is enacted into law.